At age 50, Carol was diagnosed with Parkinson's Disease. She was determined to fight off the symptoms. With a spirit of adventure, Carol visited Europe 7 times, the last three for distance walking. Learning that bicycling helped alleviate symptoms, she mounted a road bike and began pedaling, enduring the week long ride across IOWA in 2014. 2015 will bring more challenges into Carol's portfolio. Read about these adventures in Finally Out of the Mud.
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Monday, October 26, 2015
Being called
What to keep and what to let go
Tuesday, October 20, 2015
The Last Entry....home
Acknowledgements
Cyclist (as in bicyclists) also share a camaraderie. Pedaling my way between Stanfield and Hermiston on 395 I was stunned by the sudden presence very very close to me. "On your left" I heard the deep voice say. I knew exactly what to expect and that he expected me to hold my line so he could safely pass. The someone passing me was a tall lanky cyclist. He looked back and said "hope you are having a great ride" as he distanced me. Coming down the hill by the water tower (yes the one responsible for many letters to the editor. You know... the trade mark watermelon replaced by "Watch Hermiston Grow") I saw another riding pedaling up. My speed was picking up and I hardly ever remove my hands from the handle bars. The rider looked up and acknowledged me with a nod and a wave. I manged to return these friendly gestures. There is an understanding between riders. And we acknowledge that with these greetings
When Anne and I first started riding together, I was very slow. I am slow now so you can imagine what it must have been like for Anne to ride with me then We planned to meet at the Mormon church (in contrast to my meet up spot with Nancy, the Last Chance Tavern). I watched for Anne and when I spotted her, I spotted another rider with her. Anne must have acknowledged the rider coming in as she was headed out. The rider turned around to join her. The very fit 60 something gentleman saw two women who looked like they were "riders" and decided to take another spin. We can really look the part wearing our bike shorts and jerseys, don't ya know! We slowly pedaled out to Space Age and gentleman rider (GR) left us in his dust. We stopped to use the bathroom and hydrate. After our defueling and fueling break, GR pulled up. "Where have you ladies been?" Um, well we had gotten there in our own time, that was for sure. We crossed the highway and rode out Echo Meadows . GR started commenting on Anne's bike and giving riding advice. His manner was not too appealing to Anne (she lets her thoughts be known) and before too long he was at my shoulder offering cycling tips. Not wanting to lose my balance, I ever so slightly turned my head to him and said "Look, its enough for me to stay upright on these skinny tires. I don't need your help right now!!". I don't make a habit of being rude to other cyclists, or really to anyone. It must have become obvious that neither Anne nor I were interested in improving our riding under GR's tutelage that fine day. Another rider turned onto the road heading our direction. GR acknowledged him, and was acknowledged back. "See you girls, I am going to ride back to town". Off he went. Harmless. GR gave us alot to talk about in rides to come.
About 10 years ago I offered to help a young deacon with some accent reduction so he might be better understood by the congregation. Last fall he returned to our church as a priest. After the long passage of time and the thousands of people he must have met in numerous churches he served in, he remembered my name! WOW I was impressed. He reached into his pocket and pulled out my business card. He said "I called you but they didn't know you there". (How quickly one can be forgotten by some but remembers by others) I saw him again on ASH Wednesday, the first day of Lent, You know...the reason behind Mardi Gras? I went to a midday service to receive the ashes, the symbol reminding us to repent and be saved...that we came from the d
A wink, a wave, a nod, a smile, catching an eye across the room... in that split second of acknowledgement we understand each other. In this world on misunderstanding its a good place to be. Pray for more understanding. Pray for more connections in this unconnected world.
When Your Pants Fall Down ( winter Spring 2015)
Who assembled this group?
The Little Fox House
Monday, October 19, 2015
Backyard fences
The fence around the house was woven cedar boards. My mom stained it red. Every few years she would don old clothes and a shower cap to protect her hair and paint. I was supposed to help but ended up spilling a lot of expensive stain. What did I care. For me, it was fun to go to Van Patten's Lumberyard to purchase more stain. I had a haircut just like the little kid on the Dutchboy paint can. I pretended it was me. I wrote on the Facebook note "I am spent and full and empty all at once."
Fences keep things in. Fences keep things out. But not me. I can climb over.
Tuesday, September 1, 2015
C minus (almost) 3 but who is counting...why am I posting ridiculous things about Maryhelen?
Saturday, August 29, 2015
C minus 6 But who is counting.
A friend I actually met on the Camino in 2012 is walking this fall. ,,, Jennifer de la Riva.... a different path. In response to her blog post tonight I wrote this...
The pilgrim paths I tread have felt the pounding of millions of heart beats. From ancient times to present days the rhythms remain unchanged. Fast heartbeats when the path leads to acceleration and quick change and heavy heartbeats when the path leads to slow discernment. The heartbeats intertwine and murmur their secrets until they are known by all the Ways to Santiago. Your Way knows mine. My Way knows yours. We walk different paths yet share the same Way,,, heartbeats of the Camino de Santiago. I will carry your intentions in my heart.
I will carry you all in my heart.
My designated walking buddies are:
Maryhelen
Carol
Ann
I will try to interview them for their perspectives on walking the Camino de Santiago.
Wednesday, August 26, 2015
C minus 9 but who is counting Are you prepared to walk the camino?
Earlier, I got up and went to morning mass. Luke was awake and getting dressed. I said "Luke, I am going to Mass this morning to honor my mom. She died 25 years ago today." He looked up at me and sincerely said "oh. I am sorry mom". Those who know Luke will realize what a breakthrough statement he just made. My heart is still crying.
The house will be quiet when I am gone to Spain. Luke will go to school each day. Charlie will start his day with morning Mass and then go about his community service work and the small jobs he does to make extra change. I wonder, do houses get lonely?
In this quiet I am thinking about the Camino. 9 days until Paris. All the tickets are bought, reservations made up to Pamplona. I have everything ready in my pack. I could walk out the door right now.
What I am pondering now is another kind of preparation. Beyond the physical planning, the purchasing of clothing, weighing the pack, scheduling, hiking, weightlifting, trying on different shoes...
Am I spiritually ready? I am emotionally prepared? Am I mentally toughened? Do I have personal discipline to follow through?
Walking for hours on end...some of that time is spent talking and singing. There is also alot of quiet time. Time that is not filled with all the noise that fills your head at home. You will think about alot of "things". Those things that need to be kept will be kept. Those things that need to be left behind will be left. They will be trodden into the Camino by thousands, maybe millions of footsteps, just as you walk now on the sorrows, pains, tragedies left behind by the thousands, maybe millions of pilgrims who have walked before you.
I first walked the Camino Frances 4 years after my diagnosis with Parkinson's Disease. It was on the Meseta, on a very hot day, on our 25 wedding anniversary, that I yelled at God and let my anger loose for giving me this disease. And God yelled back. "Look where you are! Look what you are doing." And I left the anger there for other Pilgrims to trod so deeply into that soil that it will never return. And God has allowed me to keep walking, and cycling and moving.
Such a range of emotions.
I copied this from someones blog, and I am sorry I don't remember who to give them credit.
Prepare for the unpreparable-for. You will cry and scream and shout and hate people, things and trees. You will rail against the world, yourself, your shoes and your pack (but never your stick). You'll be jealous, petty, hungry, thirsty, furious, ecstatic, joyful, silly, sick, stupid, inane and perfect. You'll be intensely involved with the intricate workings and changes in your own body and you'll be thrown up against a wide variety of people from all over the world. You'll essentially be given a crash course in what it means to be human. Enjoy the hell out of it.
You can't be prepared for everything. But you can be open. Keep and leave. Give, and be willing to receive.
Tuesday, August 25, 2015
Novena in honor of the Holy Feet of Jesus
Novena in Honor of the Holy Feet of Jesus
Day One – With Mary and Joseph we adore the Infant Feet of Jesus (Lk. 2: 8-19)
Beloved Jesus, your infant feet, cared for and adored by Mary and Joseph, were a visible sign of your innocence and purity. May we strive always to imitate your innocence and purity. As we adore your Holy Feet, may your merits win for us the requests we make to the Father in your name. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Day Two – The Holy Feet of Jesus bridge Heaven and Earth (Jn. 1: 14)
Beloved Jesus, your Holy Feet were the living bridge between Heaven and Earth. Each step you took sanctified and cleansed the world you came to save. May we be filled with unending gratitude for this amazing grace. We adore your Holy Feet as we make our requests with confidence in your saving love. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Day Three – The Holy Feet of Jesus carry the Good News to the poor (Mt. 11: 4-5)
Beloved Jesus, how your Holy Feet suffered as they trod the hot and dusty roads of the Holy Land to bring the Good News to the poor. May we imitate your untiring devotion in spreading the Gospel message. As we adore your Holy Feet, so battered for our sake, may you look with kindness upon our requests. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Day Four – Jairus falls at the Holy Feet of Jesus to make his request (Mk. 5: 22-43)
Beloved Jesus, you had mercy on Jairus who fell at your Holy Feet and made supplication to you for the life and health of his daughter. In your mercy you rewarded his faith and answered his prayer. May you look with mercy on us also as we fall at your Holy Feet to make our requests in faith and trust. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Day Five – Mary sits at the Holy Feet of Jesus listening to him (Lk. 10: 38-42)
Beloved Jesus, you told Martha that her sister Mary had chosen the “better part” in choosing to sit at your feet and listen to you. Like Mary, may we always choose the better part. As we sit at your Holy Feet to listen to you and worship you, may you look on our requests with love and compassion. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Day Six – A woman kisses the Holy Feet of Jesus (Lk. 7: 36-50)
Beloved Jesus, this woman bathed your Holy Feet with her tears and wiped them with her hair. She covered your feet with kisses and anointed them with costly oil. May we also show you great love in gratitude for all we have been given and forgiven. With confidence and trust in your great love for us, we humbly make our requests to you today. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Day Seven – The Holy Feet of Jesus are nailed to the cross (Mk. 15: 25)
Beloved Jesus, you allowed your Holy Feet to be nailed to the cross out of love for us. You allowed your precious blood to spill to the earth from the wounds made by the nails. Give us the courage we need to stand at the foot of the cross–with our Blessed Mother and St. John–and kiss your Holy Feet. May the precious blood shed from your Holy Feet win for us the requests we humbly make today. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Day Eight – The disciples embrace the Holy Feet of the risen Lord (Mt. 28: 1-10)
Beloved Jesus, you met the disciples on the road after you had risen from the dead. In love and joy they embraced your Holy Feet and paid you homage. May we also worship you as Lord and Savior, embracing your Holy Feet. In your infinite mercy, please take our requests to the Father whose glory you share. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Day Nine – God puts all things under the Holy Feet of Jesus (1 Co. 15: 25)
Beloved Jesus, your reign will last until you have placed all your enemies under your Holy Feet. May our prayers and sacrifices hasten the day of your coming in glory. Risen Lord, merciful King, look with favor on our requests and grant them according to your holy will. (Make requests here.)
Holy Feet of Jesus we kiss you and adore you.
(Pray the Our Father ten times.)
Saturday, August 22, 2015
Not even Nemo. Reposted from June
Some months ago I was contacted by a research assistant in the Gait and Balance lab at Oregon Health Sciences University. He described a study that fit me perfectly, except for one part.......15 scans of my brain in an enclosed MRI with no PD meds and no ingestion of a calming agent of any kind. The study was looking for correlations between balance and cognitive skills. I had already completed three hours of cognitive testing without much break before I was lead over to the OHSU hospital for the MRI. I was tired , a little weepy over poor Nemo's Dad losing his wife and kids. Except for little left uneaten Nemo, Dad Clownfish was alone in the world. I felt alone...in the busy hospital, with caring researchers and my husband of 33 years nearby...I felt alone.
We PWP can feel alone sometimes. We can feel unwanted because we are different, or uncertain because of the physical and mental challenges we face. Left behind because we can't keep up. Nemo followed the "skippers" away from the "school" was drawn by the big blue sea. For awhile he was lost and alone. There were lots of scary things "out there". Things that wanted to eat him up, or misguide him, or sweep him away. Although getting caught up in the big net can be such a bummer, Nemo and PWP survive by following Dorie's advice to "Just keep swimming swimming swimming."
They let me come back the next day. This time we traveled to Beaverton. The research team had identified some value in the data I provided. So the wiring began at 9:15 am. I walked fast, walked slow, turned right, turned left, spun around, walked a tight rope, stood on foam cushions with and without eyes open. These activities were simple enough until I had to double task; balance and walking and spinning while counting backwards from 297 by threes or naming every other letter of the alphabet. After a couple hours of this rodeo, I was whisked off to Dr Dan's office where more cognitive tests were administered. One test I had to name as many words beginning with "f" as I could. Made me wonder what some people say cuz I was in such a mood by then that the "f" word almost snuck out. Hungry, tired and craving meds we got on MAX and snoozed to the Lloyd center for food and fellowship with an old friend.
I saw my friend Brandi today. She asked if I received compensation for my time. I told her I was given lunch money. She asked me how I felt about being a research subject. I feel, as I have from the very day I was diagnosed. I have to find some good in this miserable disease. If my experiences as a research subject will one day make another PWP's life easier, than by golly its worth any bit of inconvenience its caused me.
I think I will watch the rest of Nemo now.
I put on my boots today updated Aug 23, 2015
I put on my boots today updated Aug 23, 2015
Reaching into my closet with my good arm while the rest of my body was squeezed between the rocking chair and the closet door may not have been the greatest idea. I was stiff and hurting if not from the Parkinsons Disease which is progressing through my body, then the 30 minutes on the bicycle trainer at 80 rpm or higher. I wanted my boots, my hiking boots. But I was getting myself stuck. I put them on once a few months ago then hid them away where I could not see them, under the sweaters and blouses hung there in hopes I will be able to fit in them again. The boots called to me, "Come wear me". "Walk me over hills, through vineyards and on the hard pavement and cracked sidewalks of city streets." The insides felt so familiar to my feet. I needed to be reminded of that comfortable supportive feeling. The smoothness of the custom orthotics took away the tingling in the bottoms of my feet. So thats where they had been,those orthotics, hiding with my boots. These nice Keen boots that had protected my feet while walking on the GR 65, the Chemin le Puy from Montcuq, France to Ronscevailes Spain in the spring of 2013. I had very few blisters wearing these Keens. Do they have another go round left in them? Do I ?It turns out that the old friends are too worn. They helped my body get through all that mud on GR 65 in 2013 and the wonderful mud, as (facial mudd is supposed to do,) closed up the pores (in this case the breathability pores in the boot membranes). I need to move on to a new pair.
Will the new blue made in USA Keens be the ones? Will they provide as good as "understanding" as the old ones. Will they reveal to me their heart and sole? Will they say "Don't tread on me" when someone with large feet gets too close. My boots need to commit to my feet.
C minus 14 but who is counting...trying my stuff out.
Wednesday, August 19, 2015
C minus 17, but who is counting
Just a few minutes before, I came in from the walk and plopped down on the couch. Both hands were tremoring. And I mean TREMORING! I called to Charlie. "Come here, you have got to see this!" He took a look and said "Oh yeah. Look at that. Remember you have just put a big strain on your body. It was really hot out there. Cool off and rest". I managed to remove my boots and socks and stagger a few steps before collapsing on the bedroom floor. The walk was the fastest I've walked 5 miles, I am sure of it. I didn't have my backpack on thank goodness! It was enough to be out in the almost 90° weather walking on sidewalks, roads and a paved path. I learned from bicycling that heat generates up from black top. In addition to the 90° air temperature that makes over hundred degrees walking. Add to that, I woke up this morning with a terrific headache. Charlie and I talked about being able to have the discipline to keep moving toward our goals in adverse conditions and today's walk was a great example of it. I am TOUGH!
About three years ago I joined the pilgrims of the Portlandia chapter of the American Pilgrims on the Camino for one of their Sundays strolls. Even with my trekking poles I was so slow that I fell way behind the entire group. Pilgrim Robin had the "sweep up" role on the hike. She and I visited about our camino experiences as the dust settled from the other pilgrims ahead of us. I was slow, uncoordinated and in pain.
This past Sunday my friend Carol and I joined the Portlandia group for the third Sunday stroll and the "shells ceremony". This lovely tradition is a blessing from past pilgrims to the new pilgrims who will be walking the Camino within the next month. Two things were especially meaningful to me as I shared this experience with the 60 plus pilgrims gathered. First, to be able to walk unassisted with a strong pace near the front of the group while carrying on a conversation amazed me. For two miles I easily navigated speedy straightaways, tight switchbacks, traverses up and down steep creek-bed banks. Wow! I'm sure that no one else could understand what it meant to me to be able to move with such agility.The ear to ear grin may have been seen yet not questioned. At first I held this other picture in my mind, the one of the slow pilgrim disabled by Parkinson's Disease. This walk greatly diminished that image.
Secondly, I was touched to receive a blessing from people who have walked before us and who will be walking with us on the Camino in their hearts.I will carry the new shell for them.
As Charlie and I left the driveway of our house this morning I recalled the time I just started to walk again. I walked out the front door to the mailbox and back. Next time I walked out door, I made it across the street. Then I made it to the sidewalk and down to the next driveway, out the corner of the street, to the hospital and back around the hospital and back of the Butte. And before too long I was up and down the Butte three times in a row.
There's no putting a price tag on these experiences. There is no measure of my gratefulness.
Charlie and I talked more about discipline. The discipline to walk when you have a splitting headache. The disciple to walk when recovering from an injury. The disciplie to walk when your body is frozen with Parkinson's Disease. The discipline to walk even if that means slowly putting 1 foot in front of the other. Discipline to keep moving. Keep Moving. Keep moving. keep moving. Discipline and the spirit of determination to fight Parkinson's as it tries to gain controll That's what keeps us going in life. You have to put one foot in front of the other when your heart is broken when your spirit is shattered when you have lost a loved one when your job sucks. Take one little positive action, one little step at a time, moving forward. Soon the miles are covered, the hardship is overcome and you come to that place of peace and where you can rest for a while.
C minus 17 days. The countdown has begun.
Thursday, May 21, 2015
a late night post to Buddy System on the Camino
Leave jewelry and anything more than basic make-up at home.
After you arrive in Europe rest and acclimatize. Jet lag can cause you to be groggy and you should be rested and alert when you start.
If you walk in shorts you are likely to get the Camino rash from your ankles to your knees. Its a mystery rash that goes away. Also be prepared for some chaffing between your legs. And most important is foot care! Walking 500 miles fighting blisters is not fun.
Its very fun to have wine or beer with friends in the evening. Walking back to your albergue with a buzz on and tripping and getting hurt is not fun. And beware of Camino Casinovas.
Having cash is fun. Get your money from an ATM just inside the doors of an open bank. If you have trouble with card or the machine eats it help is nearby. Keep your cash,cards and passport on you at all times.And always have a couple days of cash in small bills on hand. Take your important stuff and money in the shower in a plastic bag.
Listen for bicyclists coming up behind you on the narrow trails. They are supposed to ring their bike bell or call a warning but many dont, or you may have your music up too loud to hear them. Be alert so you dont collide
The water in the fountains along the WAY is good to drink unless otherwise marked. This is not to say you wont have a tummy ache, bout of diarrhea or catch a cold. Have a few tablets of whatever you use at home and then visit or send a friend to the farmacia to get more. Email pictures of your bottled prescriptions and travel documents to yourself so that they can be viewed from a computer in town even if you lose your cell phone. The farmacia was able to fill my lost Parkinson's meds without a question.
. Remember that you can always get a taxi and almost always ride a bus. The bus is cheap and modern and can catch you up to friends if you need to rest a day. Luggage can be sent ahead so a small string bag with your rain jacket and water bottle may be all you need to carry.Weight makes a big difference, especially when you are not at your best.
You may walk quite a ways before finding a bar with a bathroom. Know "how to go" outside. Carry a little tp and a plastic bag. You are going to be appalled at where people "go" so dont contribute to the mess.
When you find your albergue for the night... request a bottom bunk if you are one of our older sisters or have trouble climbing ladders. I hang my sarong ,towel and jacket around my bottom bunk to create a visual barrier between myself and that 30 year old guy from Holland snoring three feet from my head. Don’t get anxious about finding a bunk for the night just because you are slow like me. There are many more options than albergues. Private albergues take reservations. Casa Rurales are lovely option bed and breakfast lodging and there are often rooms connected with bars. Keep asking.
Dogs have been watching people walk the Camino for centuries. They will not trouble you unless you step inside their barn to pee! Just a warning.
You will come across herds of beautiful horses, sheep and cows on open range and will meet up with those being herded. They, like the dogs, have “pilgrim watching” bred into them. But have one spook as you try to pet it may result in a camino ending kick bunt or bite. Record their beauty with your camera.
I personally see no reason to walk in the dark. And those headlamps you wear to find your way to the bathroom in the albergue shine wherever you look, which could be right in my eyes. A tiny flashlight is fine.
I hope these other "health and "safety" issues are useful. I will be landing in Madrid Sept 9 and taking the train to Pamplona. I will be walking until I fly home on Oct.6. If you want to walk with me be prepared to pray, sing, tell stories, eat ice cream at least three times a day and laugh a lot. At my slow pace there is plenty of time for these activities. I always wear a pink cap and I have a blue pack with camino patches
Buen Camino peregrinas. Carol, the Pilgrim with Parkinsons
Thursday, April 30, 2015
Don't Beat your Bike with a Rock...
Just a short distance from my house my bike decided to tip over. The poor Bianchi hurt itself into an un-ridable condition. I, on the other hand, had a nice conversation with the lady in the car my bike was intending to avoid when it fell over. For the first time in my life I beat my bike with a rock trying to bend the bent up parts back to where they should have been so I could finish the ride home. No such luck. I should have known that when you take a big rock to your bike it does not make matters any better. It did make me feel a little better,tho. I cried the obligatory tear of humility. I let one or two slip when I have to walk my bike home because it has been bad. The bike is repairable and I was not in need of repair (for once) The husband showed up to pick me up about 100 feet from the house. I loved his comment "Ya want me to try to fix it so you can finish your ride?" Then he looks it over. "I think it needs to go to the shop" He says. I didn't tell him that was probably more due
to my beating it with a big rock than the actual crash.
Tomorrow I am riding in the car!




















