C minus 17, but who is counting

Getting up off the bedroom floor and looking down at the carpet I see the complete shape of my body. It's an outline left from my sweat. I would have drowned in that pool if the carpet had not  been there to soak it up!

Just a few minutes before,  I came in from the walk and plopped down on the couch.  Both hands were tremoring.  And I mean TREMORING!  I called to Charlie.  "Come here, you have got to see this!"  He took a look and said "Oh yeah. Look at that.  Remember you have just put a big strain on your body.  It was really hot out there. Cool off and rest". I managed to remove my boots and socks and stagger a few steps before collapsing on the bedroom floor. The walk was the fastest I've walked 5 miles, I am sure of  it.  I didn't have my backpack on thank goodness!   It was enough to be out in the almost 90° weather walking  on sidewalks, roads and a paved path. I learned from bicycling that  heat  generates up from black top. In addition to the 90° air temperature that makes over  hundred degrees walking. Add to that,  I woke up this morning with a terrific headache. Charlie and I talked about being able to have the discipline to keep moving toward our goals in adverse conditions and today's walk was a great example of it. I am TOUGH!

About three years ago I joined the pilgrims of the Portlandia chapter of the American Pilgrims on the Camino for one of their Sundays strolls. Even with my trekking poles I was so slow  that I fell way behind the entire group.  Pilgrim Robin had the "sweep up" role on the hike.  She and I visited about our camino experiences as the dust settled from the other pilgrims ahead of us.   I was slow, uncoordinated and in pain.

This past  Sunday my friend  Carol and I joined the Portlandia group for the third Sunday stroll and the "shells ceremony". This lovely tradition is a  blessing from past pilgrims to the new pilgrims who will be walking the Camino within the next month. Two things were especially meaningful to me as I shared this experience with the 60 plus pilgrims gathered. First,  to be able to walk unassisted with a strong pace near the front of the group while carrying on a conversation amazed me.  For two miles I easily navigated speedy straightaways,  tight switchbacks, traverses up and down  steep creek-bed banks. Wow! I'm sure that no one else  could understand what it meant to me to be able to move with such agility.The ear to ear grin may have been seen yet not questioned.  At first  I held this other picture in my mind, the one of the slow pilgrim disabled by Parkinson's Disease. This walk greatly diminished that image.
Secondly,  I was touched to receive a blessing from people who have walked before us  and who will be walking with us on the Camino in their hearts.I will carry the new shell for them.

As Charlie and I left the driveway of  our  house this morning I recalled the time  I just started to walk again.  I walked out the front door  to the mailbox and back.  Next time I walked out door, I made it across the street. Then  I made it to the sidewalk and down to the next driveway, out  the corner of the street, to the hospital and back around the hospital and back of the Butte. And before too long I was up and down the Butte three times in a row.

There's no putting a price tag on these experiences.  There is no measure of  my gratefulness.

Charlie and I talked more about discipline. The discipline to walk when you have a splitting headache. The disciple to walk when recovering from an injury. The disciplie to walk when your body is frozen with Parkinson's Disease. The discipline to walk even if that means slowly putting 1 foot in front of the other.  Discipline to keep moving. Keep Moving. Keep moving. keep moving. Discipline  and the spirit of determination to fight Parkinson's as it tries to gain  controll   That's what keeps us going in life.   You  have to put one foot in front of the other when your heart is broken when your spirit is shattered when you have lost a loved one when your job sucks. Take one little positive action,  one little step at a time, moving forward. Soon the miles are covered, the hardship is overcome and you come to that  place of peace and where you can rest for a while.

 C minus 17 days. The countdown has begun. 

a late night post to Buddy System on the Camino

Hi girls I am a middle aged woman with Parkinson's Disease. I move slowly but steadily. I have traveled in various parts of Europe but have loved no adventure more than my Camino experiences. There is no better feeling than to know you have the courage and skills to travel independently. The Camino is all about meeting fellow pilgrims who become your family while you walk. Please do not travel in fear. Be alert and cautious but not fearful. I offer you these general suggestions, some you have read about and others may be new to you. Please feel free to comment and add. Here is my random thought flow…
Leave jewelry and anything more than basic make-up at home.
After you arrive in Europe rest and acclimatize. Jet lag can cause you to be groggy and you should be rested and alert when you start.
If you walk in shorts you are likely to get the Camino rash from your ankles to your knees. Its a mystery rash that goes away. Also be prepared for some chaffing between your legs. And most important is foot care! Walking 500 miles fighting blisters is not fun.
Its very fun to have wine or beer with friends in the evening. Walking back to your albergue with a buzz on and tripping and getting hurt is not fun. And beware of Camino Casinovas.
Having cash is fun. Get your money from an ATM just inside the doors of an open bank. If you have trouble with card or the machine eats it help is nearby. Keep your cash,cards and passport on you at all times.And always have a couple days of cash in small bills on hand. Take your important stuff and money in the shower in a plastic bag.
Listen for bicyclists coming up behind you on the narrow trails. They are supposed to ring their bike bell or call a warning but many dont, or you may have your music up too loud to hear them. Be alert so you dont collide
The water in the fountains along the WAY is good to drink unless otherwise marked. This is not to say you wont have a tummy ache, bout of diarrhea or catch a cold. Have a few tablets of whatever you use at home and then visit or send a friend to the farmacia to get more. Email pictures of your bottled prescriptions and travel documents to yourself so that they can be viewed from a computer in town even if you lose your cell phone. The farmacia was able to fill my lost Parkinson's meds without a question.
. Remember that you can always get a taxi and almost always ride a bus. The bus is cheap and modern and can catch you up to friends if you need to rest a day. Luggage can be sent ahead so a small string bag with your rain jacket and water bottle may be all you need to carry.Weight makes a big difference, especially when you are not at your best.
You may walk quite a ways before finding a bar with a bathroom. Know "how to go" outside. Carry a little tp and a plastic bag. You are going to be appalled at where people "go" so dont contribute to the mess.
When you find your albergue for the night... request a bottom bunk if you are one of our older sisters or have trouble climbing ladders. I hang my sarong ,towel and jacket around my bottom bunk to create a visual barrier between myself and that 30 year old guy from Holland snoring three feet from my head. Don’t get anxious about finding a bunk for the night just because you are slow like me. There are many more options than albergues. Private albergues take reservations. Casa Rurales are lovely option bed and breakfast lodging and there are often rooms connected with bars. Keep asking.
Dogs have been watching people walk the Camino for centuries. They will not trouble you unless you step inside their barn to pee! Just a warning.
You will come across herds of beautiful horses, sheep and cows on open range and will meet up with those being herded. They, like the dogs, have “pilgrim watching” bred into them. But have one spook as you try to pet it may result in a camino ending kick bunt or bite. Record their beauty with your camera.
I personally see no reason to walk in the dark. And those headlamps you wear to find your way to the bathroom in the albergue shine wherever you look, which could be right in my eyes. A tiny flashlight is fine.
I hope these other "health and "safety" issues are useful. I will be landing in Madrid Sept 9 and taking the train to Pamplona. I will be walking until I fly home on Oct.6. If you want to walk with me be prepared to pray, sing, tell stories, eat ice cream at least three times a day and laugh a lot. At my slow pace there is plenty of time for these activities. I always wear a pink cap and I have a blue pack with camino patches
Buen Camino peregrinas. Carol, the Pilgrim with Parkinsons

Lik

Don't Beat your Bike with a Rock...

the desired effects may not be obtained

Just a short distance from my house my bike decided to tip over. The poor Bianchi hurt itself into an un-ridable condition.  I, on the other hand, had a nice conversation with the lady in the car my bike was intending to avoid when it fell over. For the first time in my life I beat my bike with a rock trying  to bend the bent up parts back to where they should have been so I could finish the ride home. No such luck.  I should have known that when you take a big rock to your bike it does not make matters any better.  It did make me feel a little better,tho. I cried the obligatory tear of humility. I let one or two slip when I have to walk my bike home because it has been bad.  The bike is repairable and I was not in need of repair (for once)  The husband showed up to pick me up about 100 feet from the house.  I loved his comment "Ya want me to try to fix it so you can finish your ride?" Then he looks it over. "I think it needs to go to the shop" He says.  I didn't tell him that was probably more  due

to my beating it with a big rock than the actual crash.

Tomorrow I am riding in the car!

An Apple, Some Peanut Butter and a Bottle of Water .

Tears.  Months  go by without tears finding their way down my cheeks. Then they come.  Tears sting my eyes as I try to fight them back.  I dam them up until they overwhelm my efforts and spill. Wiping them away with the back of my hand I say "Damn, what are you crying about?"  Its this stupid disease.  And even worse than that its what I have done to my back and how the pain is compounded by this stupid disease. And even worse than that I am crying about it.  I am letting those tears, the ones I cry inside, slip out into the world.  The disease is winning.  It now can be seen by the world.  By my tears, by my noticeable limp, by this weakness on the entire right side of my body, by this tremor that no longer hides itself, by the fact I am crying so much lately, it is winning.

Cindee (yes Cindee my physical trainer) starts the treadmill and says "Where are you walking today?" " I am on the Tour du Mont Blanc".  Tears well up and creep out.  I keep walking the treadmill trails and then I start talking.  But I can't say the words. I can't say "I am scared shitless about this walk around Mont Blanc". So instead I talk about how I have found a route I know I can do and neither Charlie or I will know any different because its all new. I suck up those tears and attempt to put myself in the place of optimism. The place where all my dreams come true

Cindee keeps me going at the 8 elevation for awhile.  She notices how its become easier for  me over time.  I notice I am walking at only 2 mph.  She notices how quickly my heart rate returns to normal. I want to say what  I am thinking "Its going to take me all day to go 5 frickin' miles." She puts the weights back on the rack "Remember when that was hard for you? Look how much stronger you are".  My thoughts spiral down and down and I want to say "Right. We both know better.  I have these grandiose ideas.  There is no way I am going to complete my trifecta. Not this year, Not ever. Who do I think I am.  I have Parkinsons Disease".

"I have been afraid Cindee.  For some reason I am afraid to  go out by myself."  "Hey you rode your bike here the other day". "That I did, but I am liking that less and less.  I am losing confidence. I need to get walking and there is no one to walk with."

"What are you going to do when you leave here Carol.  Walk or ride?" "Probably walk. I need to walk". "Let me know when you get to the top of the Butte".  Ok, there's the accountability. I am not one that doesn't "show up".  I am not  one who does not follow through.  And I would be quite ashamed if I did not do what I said I  was going to do.  She had me!

Back home from the gym I get my toe socks on, then a pair of  light wool hiking socks.  My hiking pants.. what size are these anyway, they are fitting pretty loose.  OMG these are  men's pants?   A tech shirt, my favorite guide shirt, my famous pink camino (camino yes not flamingo) baseball cap, Boots tied and I am ready for my pack.  To the pack I add a pair of scissors and some leuko tape just in case a hot spot  or heaven forbid a blister needs protection.  Oh, I should bring a snack and some water.

What do I want for a snack?  I pack the perfect things. An apple. I can't eat an apple without being glad about it. We just happened to have some lovely crisp apples so I grabbed one.  What goes good with apples? Working in Joann Pringle's preschool class, (where I developed a love for little kids with disabilities and learned the REAL words to "Bringing home a Baby Bumble Bee")  I developed a taste for her favorite snack, apple and peanut butter  I put a little peanut butter on a WHITE tortilla (because as you remember not even Nutella makes a whole wheat tortilla taste good!) A bottle of water fit nicely in its place on the side of my pack, right where it belongs, where I am used to it. Familiar, even comfortable, the pack goes on. Trekking poles in hand I lumber out the door and off to the Butte. I am not walking even two miles an hour today.  But I am walking.

As I walk I think how horrified my son Luke would be if he  drove by  with friends and one said "Hey isn't that your mom?" We are not used to seeing a middle aged woman marching down the sidewalk with trekking poles, hiking boots and a well worn backpack here in Hermiston. That it would embarrass him makes me smile. Then I imagine a police officer pulling up and questioning me "Ma'am we have had reports of a  possibly intoxicated homeless female weaving across the street.  What's in your backpack,? "No officer I'm not drunk. Its JUST Parkinson's Disease! I am carrying an apple, some peanut butter and some water."   I hope to get to say this sometime because this scenario brings a chuckle.
Then, while climbing the Butte, I see the Cross.  I think "Keep your eye on the Cross.  No one ever stumbles when their eye is on the Cross"  Just then I trip and fall to my knees.  Oh my that leads to a need for introspection!.
Well, when one falls down one must get up but I am having a hard time because now I am laughing hard.  I have many memories of falling and laughing so hard I could not get  up.

My day has become brighter.  Forgetting to eat my snack, I get to the Cross on the Butte, down and back home without any of the above situations actually occurring, except the falling of course.
I plunk myself in the recliner, take off my boots, finally eat my snack and take a nap.

Do you ever, like me, make life so complicated that it makes you cry.  You spiral downwards in frustration, worry, fear?

 Then its time to take the challenge.  Pack up a snack, take a walk and look to the Cross.

Smile. Laugh when you fall. Get up and when you are home, take a little nap. You'll feel better. Its that simple. I promise.

All is well, with my soul, all is well.

PWP Goes Hiking

PWP (person with parkinsons) Goes Hiking

. 
I decided we should go on a hike. I am not sure why I chose a hike when I have not even been out walking much. It just seemed the thing to do on such a pretty spring day.And we were on the road to where there might be interesting hiking trails.

Driving to Ellensburg on I-82 to deliver a piece of furniture to niece Kimi we found ourselves distracted by thoughts of the Yakima River Canyon. We turned off at Selah and followed the highway up the canyon. Drift boats and fly fisherfolk swarmed the river and its banks. We pulled into the Umtanum recreational area. I reached for  my trekking poles and lumbered like a lazy bear to the suspension foot bridge crossing the Yakima River and leading to the Umtanum creek trail. It was apparent, immediately, that this was going to be more than a spring stroll...

It was going to be a stupendously challenging, monumentally overwhelming PD obstacle course.   Why would I be so challenged with this gentle climb along a meandering creek.  After all I had been preparing for hiking. My PT (physical therapist) Kimber encouraged  me to pick up my feet when I walk,  The LSVT "BIG" program she administered taught me to overemphasize movements because what I thought were huge steps were really small to  tiny steps. My "PT" (personal trainer) Cindee has been guiding me in building agility   (those crazy frontwards, sideways, backwards, in and out and out and in steps on the ladder) and strength (yes ma'am I can lift weights while walking 22 mph on the treadmill at elevation level 15 with a 50 lb. back pack oh just you wait and see). One would think that I can do anything, 'cuz after all I think I CAN DO ANYTHING.  My body image is of a 105 lb  twenty something softball player, horsewoman, backpacking athlete. Until I look in the  mirror, that is.  My realistic body is well, uh,  me...what I am now...oh you know, I don't need to describe my current appearance.  Just let it suffice to say I look like me.

Back on topic here
I view things differently now as a PWP,  After a few face plants and a broken ankle I cautiously scan the area around me for anything that may impede my travel, or cause me to fall.. My ears are in tune for bicycles coming from behind  if  I am walking and cars from any direction if I am biking. I have even learned some avoidance strategies. Crowds of people cause me anxiety as I may be accidently knocked off balance and create a dominoe effect by knocking other people off balance until we are all trying to help each other up..oh yeah, back on topic...

The first obstacle I encountered  was the  suspension bridge across the Yakima River.  It was fine, well maybe almost fine as my weight did not sway the bridge too much.

 I was balancing ok, gazing down at the rushing waters  passing underneath when VALLOOMP I was thrown off balance. (balance is a challenge for PWP) Charlie had stepped on the bridge and from about 10 paces behind me was making the darn bridge move so that between the two of us there was the most peculiar sway.  My equilibrium could not handle this.  Out came the trekking poles, my legs spread out in my drunken sailor stance and I got a grip on my terror.   "OK Carol",  I said to myself.  "You are NOT going to fall into the river, there are guard rails. Get moving!" Maintaining my balanced stance with my legs spread three feet apart I got across safely.  I am sure I was quite the sight to the fisherfolks tying flies on the other end of the bridge.

From the suspension bridge we walked down a steep embankment, under the railroad tracks and up to a place where there were a choice of trails.  The trail to the left went along the tracks, the trail to the right went up. I should say UP! because it went practically straight up.  The next obstacle...my husband...I hate these lectures that squeak out of his generally kind mouth.  "I hope that's not the trail" I said.  Here it comes.  " Now Carol, what are you going to do in France if that's what the trail looks like and its the only way to go".  Oh those "what if's!  Luckily UP! was not the way to go  and we followed the trail left.

Up the gradual incline of the winding  path.  I was stiff from riding in the truck. My back was killing me.  It was work to pick my feet up over the rocks.  They felt like boulders and then there was POISON OAK.  It was here, and it was there and I had to turn my body this way and that to get around it. These were movements I didn't know I could do anymore.   An unknowing spectator would have wondered if I was doing the "twist" or maybe being attacked by killer bees that had migrated to the Yakima River Valley from South America.  I managed not to brush against a leaf! Charlie either. Danger of infestation  behind us, we continued on.

I asked the all knowing husband the time.  He looked at his phone and replied "1:59".. I did not want to argue that it was 1:37 when we left the K-Mart in Yakima  (where it took 30 minutes for him to purchase 2 bottles of water) And that had to be an hour ago.  PWP can tell the time without a clock. Almost to the minute this girl knows when she needs meds.  It  had to be three o"clock.  We walked on a few more steps and I came across a nice sitting rock.  "I think I will sit here and take my meds, could you check the time again"  "2:59"  Hmm how time flies when you are having fun.  We walked on and I started getting into the swing of things when we came upon the Carol height native grasses. The grasses reached like tentacles wrapping around my trekking poles, jerking  them out of my grip mid step and throwing me off balance.  Self talk again: Ok Carol you can walk without  trekking poles a few feet. Get over it and move on.

I forgot to mention there were some delightful things about this trek. Blue sky above (with vultures circling)  beaver dams, a huge beaver lodge (I almost fell into the creek trying to take pictures of), the sound of song birds (probably carrying bird flu) ...then...

There it was, the next obstacle.  A branch crossed the trail about chest high.  Can't go over it, can't go around it, must go under it.  Another thing this PWP can no longer do is the limbo.  Bending knees as much as I can (cuz this girls back don' bend so much anymore) I made it under and to the other side.
Husband did the same thing.  He didn't look any better getting under that tree than I did!

We took a few wrong turns (no yellow Camino arrows here) and backtracked to find the correct trail up the narrowing canyon.  The final obstacle appeared before us.  The creek needed to be crossed.  I have crossed many creeks in my life (and fallen in a few while doing so).  Today was not a day I wanted to slip off that half submerged log and land on the rocks I was supposed to be jumping three feet distance to reach. My sense of timing played in perfectly.  I checked my phone.  "Oh, its time to turn back if we are going to make Elllensburg by 5." Saved!

I usually beat butt on the downhill. I even had a chance to practice the "Australian Pole Dance" (Yvette) the  downhill use of trekking poles. I sent  Charlie  across the suspension bridge first so I could take some photos (wink wink). No huge sway this time. The hike was ending nicely.

I celebrated this first hike of the year with a delish dinner and a dessert of brownie sundae with extra ice cream.  No obstacles were noted in the consumption of food this night.

We all face obstacles in our paths.  Yours are no different than mine although we may call them by different names. Keep an eye out and an ear open to what's  happening in your home and in your workplace; with your family and with your co-workers.  We cannot avoid obstacles (or guide others around them) without recognizing them first. No one should stumble or fall. Step high, be kind and choose the right path.